It's been an exciting couple of weeks in our house (and out of it). We drove down to Orlando but sadly were not able to see any of the share people we wanted to see due to some scheduling commitments. Plus the husband didn't want to spend any more time in the car than we already spent driving 17 hours to get there. HAHA.
Anyway, Riley's run through Disney and Epcot was on Sunday morning (a week ago). She did amazing. They ended up running about 9 miles out of the 13.1. More importantly, she had fun. At some point in the weekend, she taught Miss America to boy band. She went to Harry Potter world. And during the run, they took some pictures while they ran/walked, they celebrated with each other and she defied the odds. I think about the doctor who told me that we had a good chance of a child who would have little to no quality of life.
On Thursday of this week, she turned 15. In so many ways, I feel like I can remember every single day of that 15. But I also feel like I blinked and she grew up. Now time is just slipping through my fingers.
We celebrated her birthday at a fashion show given by a local high school as a fundraiser for our hospital. We did 3 dance marathons over the weekend. It seemed appropriate and a bit poetic.
So funny story about the fashion show. A young man comes up to Riley at the fashion show and says, "I didn't realize it was your birthday today. Happy Birthday!" He also kind of side hugged her to him. She explained after that she knew him from dance marathon but didn't know his name. So she walks in the fashion show a bit later as does he and I notice he is standing next to her and they are chatting happily. The teacher sitting next to me leans over and says, "she could do worse. He's a great kid. But he's a senior." Yeah, not gonna happen. HAHA Anyway, they come off stage and I tease her about the chatting. She looks confused and says, "he came up to me and said, I had no idea it was your birthday today. Happy birthday." I told her maybe he was awkward around girls and didn't know what else to say. Then we turned around as he walked up to her...with his identical twin brother. Totally unexpected but hilarious! She also has no idea which one she has been talking to at dance marathons for the past couple of years. What a goober.
We also took the time to get a few shots of her holding her baby picture since she was all dressed up AND it was her birthday.
At one of her dance marathons, I felt a tap on my shoulder and turned around to find Riley's primary nurse from the NICU. She said she saw the DM info on the news and thought she'd see what all the fuss was since she always sees it on my facebook. That was a lovely surprise.
In other amazing news, February wasn't bad for me this year. I had a couple of moments of time warp and memories, I had about an hour of good cleansing cry back in February and that was that.
Happy Birthday to Riley! That picture of Riley holding her baby picture - wow! It's amazing to see how far she's come.
Happy Birthday to Riley!! So very very proud of her as I'm sure you are too. Glad you are doing better and had a cleansing cry. I had one of those too, it really helps.
Love and Hugs
I love this girl so, so much! Happy Birthday, Riley! You make me proud for so many reasons. I can't wait to see and be a part of the rest of your journey. Julie... you're stuck with us Frieds.
Love and hugs,
I love everything about this post. Yes, even the crying that took place in February, if only because it was a cleansing cry and it was just that once. You've come a long way, just as your beautiful girl has. I think the fact that even now, fifteen years after the worst and best month/days of your life, you are giving back. You're raising an amazing daughter to whom giving back is second nature.
We should all be so amazing. :-)
Love you both so, so much.
I LOVE this. Happy Birthday to Riley! Love the NICU nurse was at one of her dance marathons, how amazing. You have come so far, both of you!
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