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  • Mom of 23w6d baby Abagail, went to Heaven at 13 days old
    My husband and I have dealt with infertility for over 10 years. Every year hoping and planning to start our family. Finally after years of hardships, husbands cancer 3x, family deaths and caregiving, financial difficulties, other health issues, etc. We were able to do IVF, traveling to a different city, and got pregnant first FET. Going to appointments out of town, many medications, morning sickness, all filled our days, but the perfect baby girl and pregnancy made it the happiest and most hopeful time of our lives!
    The new year came and a few weeks into second trimester, I finally started feeling better and having more energy and showing off my new baby bump. I was enjoying my pregnancy and looking forward to having my baby. I was planning my baby registry and baby shower and setting up the nursery. I had my baby's anatomy scan and met with my Dr to go over the results, everything was perfect! We were beyond excited and felt we had jumped the big hurdle and sigh of relief everything was perfect for baby and me.
    A week later I met up with my mom to help label and send out our baby shower invitations. Shortly after we had finished, I was rushed by ambulance to Labor and Delivery. I had no symptoms that i had recognized, but i felt a balloon feeling coming out. Once at Labor and Delivery light contractions started, and they did everything they could to stop preterm labor.
    The next day on March 13th 2018, at 23 weeks 6 days pregnant, I gave birth to my baby girl Abagail by classical C-section. She was helped and stayed in the NICU as she was so young and immature. The hardest part was not being able to hold her and kiss her. She had many ups and downs and long days for us all. The last day with her, as her body was failing and there was nothing left to do to help her, my husband and I were finally able to hold her and love on her. It was the best day of my life, but paired with the worst day of my life. She lived for 13 days before passing and joining Heaven March 26th 2018.
    I miss her so much and hate that i can't bring her home and watch her grow up. I had so many dreams of us as a family. I am glad she is in Heaven, no more pain or suffering and worshipping before God with my brother Tracy and Grandpa Jim and other family members and all the saints. I just wish Heaven wasn't so far away...
  • My name is Adrianne, my son was born at 27 weeks and 0 days on September 13th, 2017 weighing only 2 lbs 4 ozs and was 13 inches long. I suddenly developed preeclampsia and had to be hospitalized and day 2 into my hospital stay they had to take my son by C-section because of slow movement. I cried the moment they told me that they had to take him. I knew it was too early for him to be born, my son was born exactly 90 days before his due date. He was in the NICU for 59 days and that was the longest 8 weeks of my life. My son was lucky enough not to need oxygen or IV fluids after 4 days, but he still had and still has a battle to keep fighting. I pray everyday for his health and my strength, because without the support of family and friends i don't know how we made it. I am happy to report that Jeremiah is now 7 lbs and 18 inches long.
  • In reply to lilbird930:

    Welcome to Share. I believe you found you blog and I commented on if already. SHARE is a great place to fine people who get it. Many of us have walked similar paths. I hope you find as much love Comfort and support as I have found here. Please know you are not alone on this journey!

    Much Love
    Samantha
  • In reply to lilbird930:

    Hello and Welcome to Share,
    I am so very sorry for the loss of your beautiful baby girl. I too lost my baby girl almost 10 years ago and think of her everyday. Congratulations on your new baby, although I'm sorry you find yourself embarking on the journey of the NICU. There are many parents here who understand and we are here for you. Many of us use the blog feature as an online journal, to keep track of our feelings and events with our little ones. I hope reading and writing here brings you comfort. Wishing you strength and peace.
    Love and Hugs
    Brandi
  • Hello, I am new here and I'm dealing with a loss of a child and a child in nicu. my daughter was stillborn 6 yrs ago and I miss her everyday. Also my micro preemie is currently in the nicu. I am here looking for support from others who can relate and to share my story
  • In reply to KJ's MOM:

    Hi KJ's MOM. Welcome to Share. I'm glad you found us. I'm sorry You are facing this decision for Kevin. My son was a 26 weeker, also 1 lb 10 oz. He also has OT, PT and ST and had feeding therapy until a couple of years ago. He also aspirated but we were able to address it by thickening his fluids. I'm sure you will make the right decision for your son, and know that you can get second (and third) opinions until you are comfortable with the advice you recieve. I will be keeping you and Kevin in my thoughts.
    Marissa
  • In reply to ethan&casey's mom:

    Thank you Erin it is much needed with the disorder she has I appreciate the thoughts
  • In reply to Hunter and Randi's Mom:

    Thank you Marissa I could sure use them. I know God gave me her for a reason no matter what we go through. We go to our first appointment this coming week please keep us in your prayers.
  • In reply to emmasmommy0515:

    Hi Shelby. Welcome to Share! Congratulations on the birth of your daughter Emma Lou! I am keeping you and Emma Lou in my thoughts and hoping that your doctor visits and appointments go well.
    Hugs,
    Marissa
  • In reply to emmasmommy0515:

    Hi Shelby, thank you for sharing Emma Lou's story. What a scary time for you and your family. I wish you much strength as you navigate the road ahead.

    erin
  • Hello Everyone. My name is Shelby my daughter Emma Lou was born at 34 weeks and 1 day. I had preterm labor with her when I was 30 weeks they stopped my labor thank god but spent 12 days in the hospital to make sure my contractions went away. I was working a full time job and going to school while pregnant and nothing had went wrong till then. On May 30th 2015 I went into full labor @ 5:45 pm and went to the ER but wasn't in any pain or anything until around 7 p.m. that night and got my epidural at 9 p.m. I was only in labor and hour and a half and my daughter was born at @ 10:49 pm that night. She had problems breathing when they cleaned her off and checked her weight and everything. I got to hold her for just a couple of minutes and she was took to the NICU unit. I did not get to see my daughter till 2:30 am Sunday morning. She was on oxygen and pulse monitor and blood pressure monitor and iv she was born with an infection. My daughter was off the oxygen within 6 hours of being born and then about 2 days of being born she developed jaundice. Thankfully she was cleared after 2 days of the phototherapy. The iv stayed until the day before she was finally released from the hospital on June 6,2015 while she was in NICU she was diagnosed with Achondroplasia a form of dwarfism. I had a really hard time accepting that my daughter had the disease because I didn't carry the gene and neither did her father or anyone in our family. While in NICU march of dimes was awesome to me and my family while Emma Lou was in there they talked to me and listened to what I was going through and helped me understand that it would be fine and they only thing that would be different would be Emma Lou's height. On July 28.2015 they confirmed the diagnosis of Achondroplasia so know we have a long road of doctors and appointments to make sure that Emma Lou's health is going as it should be.
  • In reply to lvazquez:

    Thank you Lindsay! I just read your profile....I admire your strength and courage to share your story, you are a very strong woman!
  • In reply to Mai C.:

    Hello Mai and welcome to Share. Congratulations on your son Aidan! I'm a mom to a 34-weeker too. I'm glad to hear that your son met his NICU goals and came home. I know the NICU is an emotional ride for sure. There are many parents on this site whose kiddos have endured NICU stays. I hope that you can connect more here.

    Lindsay
  • Hello, my name is Mai. I'm the mom of a 34 weeker, Aidan. We were discharged from the NICU after a very long 5.5 weeks! Lots of ups and downs, and the most emotional and stressful time of our lives, but all worth it! I am here to share my experience with everyone and offer any advice or a kind ear. The March of Dimes was amazing during our NICU stay, and I want to keep in contact. XO
  • In reply to eburttr:

    Hello and welcome to Share. I am so sorry to read about the loss of your baby girl. From reading your story, it sounds like she was such a fighter and tried to stay with you as long as she could. I hope that you will hold on to the time of togetherness as you remember and honor her. I was in labor as well and didn't know it. I had undiagnosed preeclampsia, a placental abruption, and a blood clot. He was 30 weeks along and was born sleeping.

    There are many on this site who have experienced loss. Many who have been able to conceive rainbow babies with extra care and monitoring steps in place. I hope that you read some of their stories and find more hope and inspiration here. I found this site days after our loss and it's been a helpful tool in my healing journey. I hope that it can do the same for you.

    Sending you warm thoughts and well wishes,

    Lindsay
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