My name is Stephanie. I've already started a blog, but wanted to introduce myself here on the boards also.
I gave birth to a seemingly healthy baby girl we named Rowan Josephine on January 31st, 2012. We took her home after 2 days in the hospital and resumed with our lives, happy to have this amazing new life to look forward to.
One morning, I woke up to find her looking extremely swollen and whimpering. I rushed her to the hospital where they ran tests for an entire day to try and find out what was happening.
The next morning they informed us that she had bacterial meningitis, and it was bad. She suffered extreme brain damage and was in a deep coma.
After 2 agonizing weeks, hoping for a miracle, we decided that she had suffered enough and let her go.
We struggled with the decision, but felt it was really the best thing we could do for her and for us.
At the end, we came to realize this was all caused by Group B Strep.
They couldnt tell us for sure whether it was late onset from birth - since I tested positive, I received antibiotics during labor. Or if she had contracted it from someone else. I had no idea it was something we should be worried about after the fact.
Here we are almost a year after her passing and we still are not any clearer on the way it all happened.
I am currently 28 weeks pregnant with our second child, another girl. I want to be excited and hope for the best, but this fear lingers ever near.
I am terrified of it all happening again. And there's no fool proof plan to prevent it at all.
I feel we need more information on this. I felt like I was reassured nothing bad would happen, and the very worst did.
What happened to my baby was devastating. Watching her slip away so suddenly was the worst thing that will ever happen to me and my boyfriend. I so hope no one else has to suffer like we did because of this terrifying infection.
If I can pass along anything it's to ask more questions. Get to know more about this if you are a carrier. Dont just take things at their word. There are other options out there, even if no one knows what they are yet. If we bring more attention to this problem, we may someday have a way of preventing other babies from such damage.
Thanks to this site for existing. I'm so glad I came across it.
Best wishes to all those suffering out there.