We found out on August 1, 2020 that we were expecting after 4 previous pregnancy losses since 2017, our first loss was a miscarriage at 16 weeks, we lost our little girl who we eventually named Felicity we never knew why we lost her. We experienced 2 losses after her, those 2 were chemical pregnancies and in July of 2018 we found we were pregnant again and found it was a boy, we were so hopeful and excited but all of that turned into fear at our 12 week scan we found out that our boy had Left sided CDH (congenital diaphragmatic hernia) which means the stomach contents which should be separated by the diaphragm is open and now are in the chest compressing the lungs. We were devastated and so lost.We had never heard of CDH before and it was a complete and total shock. After testing and lots of hard decisions and due to the severity of his CDH, we made the heartbreaking decision to not continue with that pregnancy and we lost our boy on October 29,2018.
After that we decided to take a break and allow ourselves to heal as best we could and just focus on us. We got married on October 18,2019 and went on our honeymoon in early 2020. We decided we would start trying again well into 2020 and we were shocked to learn that on August 1,2020 we were pregnant again. It was such an awesome surprise that I was pregnant. We felt so positive and again hopeful but nervous and reserved for this pregnancy because of everything we went thru previously. We would never have thought in a million years we would be faced with another baby with CDH especially since with our last we were told that there was a 1% chance it would occur in a following pregnancy. We were that 1% exception..
On December 2,2020 we went to our 20 week anatomy scan and again we were faced with the unbelievable, that our boy has severe left sided CDH just like with our last baby boy that we lost. We were referred to the Childrens Hospital of Philadelphia and we had our first appointment with them on 1/5/21. After the MRI,Fetal Echo and 2 hour ultrasound they determined it is severe left sided CDH at 22%. We were so devastated after that news, after weekly appointments at the Children’s Hospital of Philadelphia from 20 weeks pregnant to our son Oliver’s birth on 4/7/21, we delivered him at the Children’s Hospital of Philadelphia special delivery unit and he was immediately taken to the Neonatal intensive care unit and place on ECMO machine which basically was our sons lung and took the work off of him and was able to give his bad lung time to rest and try to expand, he was on the ECMO for a little over 20 days, had his CDH repair while on ECMO which was out of the norm for a child having a CDH repair which on ECMO because of possible extreme blood loss, then he had silo which held his bowel outside of his body until he grew a little more to fit them back in, which was done a couple weeks later, he did well with those surgeries, he then developed an infection about a week and half ago and during that critical time we were not sure our son Oliver was going to survive, but he pulled thru. Our son Oliver is still in the NICU and we do not know when he will come home. He is the strongest, bravest 2 month old I have ever met and he is a true warrior. He has been thru so so much in his short lofe. We have had to relocate to Philadelphia during this entire time to be near him and having to juggle him and all of our finances has been the hardest and the most challenging!! Prat for us & our beautiful strong brave boy!!!
SEE ALL OF OLIVER’S UPDATES THRU OUR GO FUND ME!!! https://gofund.me/3a0e0f76
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