My husband and I are both 27. When we decided to try for a baby everyone encouraged us and we heard all about how easy it would be since we were young and healthy. My first pregnancy ended in a miscarriage at 9 weeks. My second pregnancy was going great, we had our 20-week scan and were told we had a beautiful baby girl. She was perfect and there seemed to be nothing wrong. They couldn't quite get all the views of her heart so I was told to come back at 24 weeks when she was a little bigger to get the rest of the images. When I went in for my scan they told me that I had no amniotic fluid left and that she had only grown 2 oz in a month. 5 days later I was admitted to the hospital and delivered her via an emergency c-section. She was 25+3 weeks old but weighed only 11.2 oz. They were able to intubate her and she was admitted to the NICU. We have been here for 17 days now. The first week she did great, the honeymoon period we were told about. She had a clear brain scan, her heart looked great, and her blood tests came back good. In week 2 we started to struggle. The immaturity of her lungs started to show and began struggling with oxygenating her blood. Her doctors experimented with her ventilator and her medications and managed to stabilize her again. Now in week three things have reached an all-time low. She is on 100% oxygen but cannot seem to get above 75% oxygenation. She is having multiple destat events every hour, and the doctors told us to prepare for the worst. She has fought so hard and her very existence is already a miracle, but I am not ready to lose my baby girl. I am filled with so much fear and I am looking for any hope to cling to. Everyone I have talked to said that NICU is a rollercoaster, and I am just waiting for the upward climb to start.
I know the rollercoaster feeling and the flustrations of being in the NICU. I have been in the NICU with my surviving twin boy. I was 22 weeks and 3 days when they were delivered via emergancy c-section. My son also had a pretty long honeymoon phase and since week two we have been on a nightmair of a roller coster ride. We had to be transfered to a level 4 NICU and he has been back and forth with his vents and their settings. The advice i have is just advicate for her. I have had to advicate for my son a couple of times to get more sidation to help him not fight the vent so they could get his oxygen down. I had to fight for them to change his vent to a diffrent one because he wasn't dowing well an i knew the other vent was more gental for his lungs and knew he needed break. Just know your not alone with your fear.
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