Living my new normal

Scott's story

  • I am so glad to see that you started a blog and shared more of Scott's story although I wish there wasn't much of a story to tell. I think that you described the feelings of "the beginning" so perfectly. When my water broke at 22 weeks I convinced myself that I had peed my pants. Even at the hospital when it was confirmed I was convinced that everything was going to be fine. I think that you are right. It was the beginning of the feelings I would feel that first week after my daughters death. When I try and educated people now about the death of a child I try and explain to them that I don't think the human brain is capable of handling the trauma of losing a child so it processes the information in stages. It will be five years in November and some days I'm still now sure I've fully processed it. Days like today are so hard. Mothers Day. Those are the days where everyone on Share gets it. I hope that you will find comfort here and will gain a certain amount of healing in knowing that even in your darkest day, you are not walking this path alone.



    Scott is perfect in every way.

  • I'm so sorry to learn that another family is living a "new normal".  It's a decision that no family should ever have to make.  Your sweet little man is beautiful and touches lives each and every day I'm sure.  Please know that many of us know the heartache of that "new normal".

    Hugs to you!


  • My heart breaks as i read your story because it reminds me of the day i also said goodbye to my son Christian. Words cannot describe the emotions and just the feeling of despair of not being able to do anything for our baby and then having to see him and know that you will never hear his first word or teach him to ride a bike or do anyting we hoped to do. No one can understand what we face everyday. Losing a child is the most painful experience.

  • I have tears reading your story.  I am so very sorry for the loss of your precious baby boy.  I just feel all of the same hurt and pain and it breaks my heart that another family is enduring this loss.  Thank you for sharing a photo of your angel with us.


  • I am just now seeing this. I am so sorry you had to go through all that. I too lost my child in the NICU. We had a son at 31 weeks with multiple birth defects. We had no answers as to why. The doctors did everything they could to keep him alive for 75 days. We too sat in the room with doctors and nurses that took care of Jamez. We sat in that room 2 times before the last time with the doctors. It is a hard decision that no parent should have to make. When I read your story it made me think of Jamez. Jamez was born on June 4th. I am glad that you were able to spend 2 weeks with your sweet Scott. He is so precious I love his pictures. I hope this month brings you as much peace as it can during this time. I remember my first year with out Jamez. He would have been 3 today. Happy Birthday to your sweet little boy Scott. HUGS