Living my new normal

The diagnosis or at least what we do know

  • I am so sorry that you have no real answers about what happened with Scott. To have things go so seemingly perfect and then end so tragically is just unfair. I also understand having the ability to make a child basically taken away from you as well. It is a hard pill to swallow. I am glad you have chosen to support the March of Dimes. We have done the same. I don't want another parent to live our hell either. In our case the monster prematurity stole our daughter from us and I don't want one other family to live that nightmare. I am glad that you found Share and I hope that you are finding some comfort here with all of us.



  • It is so hard to not know what happened and why.  My daughter was over two years old before we got her diagnosis of 5p- syndrome.  It was so hard to wait all that time, knowing something was wrong, but never knowing exactly what.

    I definitely understand the very personal decision you made not to have any more children.  It couldn't have been easy but you have to do what is right for your family.

    Thinking of you,