January is Birth Defects Prevention Month. In thinking about the wording of that, "Birth Defects Prevention Month", I get perplexed. While I know that there are some birth defects that can be prevented, not all of them can.
I know, not just in my heart, but because I was told by 2 different genetics doctors, that there is nothing that we could have done to prevent our son Marco from having the birth defects that took his life. He had a genetic disorder, that will always remain unknown. It caused multiple defects, or as the doctors liked to term it "anomalies"...both of those words, I hate.
So, while knowing that there is nothing I could have done to prevent what happened with my Marco, I sit here reflecting on what birth defects stole from me:
My feeling of safety
My ability to enjoy pregnancy as one should
I know there is much more, but for some reason, I can't put them on paper. But isn't what is listed there enough? I mean, each one of those on their own is enough to knock you down.
What birth defects didn't steal from us though, is love and hope. And, if anything, it only made our love stronger. Love for our son, each other, our daughter and future kid(s), others who may be going through something similar.
Marco's time here on earth was short, and it was an extremely difficult time for us. But he remains a part of us for always and ever, and knowing that he is all around us in everything we do makes my heart smile.
Marco, you are so much more than a baby who died because of birth defects. We love you more than you could ever imagine, and even though things turned out vastly different with you than we had hoped, we are so very grateful that you graced our lives with your presence and that you remain all around us.
Beautifully written Libby. Thank you for this.
The list is definitely enough and more than anyone should have to endure. Marco has brought so much to my life by introducing me to you. Love you both!
These words are so beautiful- so filled with love, and I share so many of your thoughts.
Lots of love to your and your sweet Marco.
So touching and powerful, Libby. Marco knew only love and continues to know that love you have for him.
Thank you for sharing your journey with us.
March of Dimes fights for the health of all moms and babies. We're advocating for policies to protect them. We're working to radically improve the health care they receive. We're pioneering research to find solutions. We're empowering families with the knowledge and tools to have healthier pregnancies. By uniting communities, we're building a brighter future for us all.
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