I'm here to tell you of a survivor of NICU. I have had 2 others that were boys that didn't make it but in 1993 I had my daughter at 34 weeks. She was born 6th April 1993 weighing 3lb 14oz. When she was born she had trouble breathing and spent a few days in NICU. She looked like a skinned rabbit but she was just perfect. When I got home and she was still in hospital I became afraid to go back to see her. I keep thinking if I go back something may go wrong and I just couldn't cope with losing baby number 3. I spoke to a social worker that was there when I lost the others and she was just great. She convinced me to visit her and I look back now and think to myself. Why would you think like that. I was scared. When I took her home I had to dress her in cabbage patch dolls clothes they didn't have preemie clothes back there not like now. It took her a while to catch up to others in size. When she started school she had to sit on 2 large phone books she couldn't see over the table. All her life she's been a severe asthmatic which has always been hard to control. Shes 26yrs now and weve just sort of got this under control not perfect but under control. Its taken years, many doctors, specialists and hospital visits to try and help us. She's come close a few times at the hospital where they nearly had to inner tube her so she can breath properly. But I finely found the best specialist ever. I saw a write up in the local paper so we went and got a referral Our GP said take this in so they can see our bad she is We had an appointment the next week. Which is rare you normally have to wait at least a month or two. For her first appointment he got her to do a lung test the results came not as good as he wanted. He wanted to know what puffers she was on. Shes on 2 but wasn't on a steroid one He wanted to know why the other specialist took her off it. I said I don't know. Oh my he was not happy. He did some blood tests, gave her a new puffer and the next week we got the results. She has an allergy to grass pollen and she has a rare condition that's called Silent Asthma Its a condition where the airways become so tight they almost completely close up but she doesn't have a wheeze. Its very dangerous because it can be missed that shes actually having a severe asthma attack. Even the ambulance nearly missed it as her chest sound clear but she cant breathe I had one ambulance try and say shes having a panic attack I nagged them to take her to hospital and they did thank goodness after she had 120 puffs of ventolin and atrovent they finely got her breathing properly at the hospital. But since shes got her new steroid puffer, the ventolin, atrovent and these new allergy wafers she takes daily ($100 a box of 30) shes been a lot better. shes starting to be able to live a fairly normal life. She can do most things that we take for granted, shes able to work part time and she not become so exhausted from just trying to breathe properly as often. She sees her specialist every 3 mths now instead of monthly and shes finding life much easier now. He also said that if she ends up in hospital from an attack Im to ring him asap so he can keep an update on how she is. Hes rang here at home before after an attack the next day to find out how she was and to make sure the hospital was looking after her properly. Hes so good not many do that. The asthma is still a problem but its 100% better than it it was and at the moment it seem under control for now Her next appointment is in june
Thank you for sharing your kids' stories with us.
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