In reply to Sharonej:
Re: CSID info
My name is Lisa and I also live in Nevada. I read your post and thought WOW! We were told by the state that my daughter, Lila, was the only child in NV with CSID. Could you contact me and share some information on your doctors, nutritionists, etc. Lila had a wonderful doctor here in Las Vegas, who knew what to test for, Dr. Ammad Sheik, at Pediatric Gastroenterology Specialists. Other than that, NO ONE has heard of it. I'm planning on making another appointment with him, as it's been a year since her diagnosis. She still has loose stools, and sometimes bouts of diahhrea, but is on a very restricted diet. I'm hoping to get some direction as to her care as she gets older.
Also, although Lila is only 23 months, I'm already working on menu ideas and recipes for her all the time. I'm especially working on baking recipes, as her 2nd birthday is nearing and I want her to have a cake if possible.
I am in the Las Vegas area, if you're near, and would like to get together, please let me know!