Feeding Tube Awareness Week

Today kicks off Feeding Tube Awareness Week! Does your child have a feeding tube? Please share your story! 

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  • My 3rd son, Eligh, was born with a birth defect called malrotation of the intestines.  He had surgery to correct it at 10 months old after chronic vomiting.  We thought that would solve his failure to thrive problem but it did not.  When he was 2.5, we found out he has an autoimmune disorder called Eosinophilic Esophagitis and he is "allergic" to dairy, soy, peanuts, and tree nuts.  Eligh had already developed an oral aversion to many foods so his even stricter diet caused a weight loss of 3 pounds in 6 weeks.  I demanded something be done.  His G-tube was our saving grace.  It took so much pressure off of him and us to get proper nutrition in him along with his daily medicines.  He gained his weight back in only 3 weeks!  He is now 3 and still getting tube feeds.  He is slowly gaining the weight he needs but is still on the low end because of his EoE.  I honestly can't imagine how he would have survived without his tube.  Love my little Tubie!