Share Your Story

  • Site
  • User
  • SIGN IN
  • SIGN up
  • Site
  • Search
  • User
MARCH OF DIMES | MARCH FOR BABIES | NACERSANO
  • Blogs|
  • Forums|
  • Groups|
  • Galleries|
  • About|
  • Contact Form|
  • More|
  • Cancel|
  • -About Us
    • Getting Started
    • Share with Care- Community Guidelines
  • Customer Service Request- Contact Us

You are currently reviewing an older revision of this page.

  • History View current version

Share with Care- Community Guidelines

Share Your Story is a warm community filled with many different kinds of families who have been touched by, inspired by, or even personally affected by the mission of the March of Dimes. This includes many who have loved, lost, survived, cried, rejoiced and mourned during their time in the NICU or during and after a difficult pregnancy that may or may not have had the outcome that was expected. It's a place where families understand those terrifying moments with a seriously ill child, where a new preemie parent can seek and find comfort, where a mom can learn more about her child's rare condition. Because of the sensitive, emotional nature of Share, it's easy to let our guards down. But Share Your Story is a place where we need to "share with care."

Search engines like Google are a double-edged sword. They help families who desperately need our community find us. But they can also expose our community to those few people who abuse our openness. While you can choose to make your blog posts and photos private from those search engines, it doesn’t mean that people cannot find them at all. As a support community, we want to be as open as possible to help as many people as we can. If you take precautions, you can safely tell your story, share your child's photos and experiences, and meet new, understanding friends We have provided this list of community guidelines to help you have a positive experience.

  1. It's all in a name. When creating your user I.D., avoid using your real first AND last names or the last names of your children- unless you are sure you want people to know exactly who you and your children are.
  2. Search yourself! Go to any search engine like Google, type in your name and search for yourself. You may be surprised! Share is an open site. Unless you block your blog, posts, photos, videos, and galleries, any search engine can find your content. Anything you say can be saved and read for months to come. And remember, even when you block your posts from the search engines, these posts are still available for anyone to read as they browse the site.
  3. Reveal with care. What we learn about others online is usually just one "slice." Never give your phone number or address to someone you meet online unless you're SURE who they are and you are willing to have phone or visitor contact. Don't give your password to others.
  4. Choose your words wisely. You don't have to be a Share member to read posts here. Anyone can read what you write: your mother-in-law, your boss, your spouse, your religious advisor, your mortgage lender, your baby's neonatologist. You never know who's watching... "She said WHAT?!" Remember, old friends and your mom may regularly read your blog!
  5. The doctor is in...and may not like seeing his or her name in your online posting. Protect the identity of your helping (or not so helpful) professionals. Tell the story, or share a name. But don't say both.
  6. Picture *This*... Your pictures reveal a lot about you and your baby! Be sure they are something you'd show your mentor, your best friend AND the local paper. Many of us have pictures of ourselves as naked babies, but they're not posted on the Internet for all to see. Protect your baby's privacy. Please don't post naked pictures of your children. NICU pictures are OK.
  7. Share only what is yours. Think twice before posting pictures, videos or quotes that do not belong to you. You may find yourself in copyright trouble.
  8. Not everything you read is factual. Just because someone typed it, doesn't mean it's real. When we're feeling strong emotions, we may write something we would not otherwise write. Sometimes we say things that are not real in order to work through an emotion or idea.
  9. Read generously and assume good intent. Don't be too quick to judge another's words. In the online world, we can't hear the tone of another person's voice, see her body language or know the context in which he's writing. So we may mistakenly take offense and respond in haste.
  10. Face-to-face with caution. Over time, many people become friends online and want to meet in person. Take care and be sure you have your first meeting in a public place.

CONTACT US

MARCH FOR BABIES

DONATE

Get to Know Us

  • Prematurity
  • Research
  • Peristats
  • Product Catalog
  • Professionals
  • Partners
  • Careers
  • Annual Report

Connect With Us

March of Dimes fights for the health of all moms and babies. We're advocating for policies to protect them. We're working to radically improve the health care they receive. We're pioneering research to find solutions. We're empowering families with the knowledge and tools to have healthier pregnancies. By uniting communities, we're building a brighter future for us all.

© March of Dimes
Privacy, Terms, and Notices